Wow, been a while since I wrote anything.
I guess that is because having  nothing new is boring.  And boring is good in my case. I am still in remission, it will be two years in October.  I continue on 25mg Revlimid; dex has been cut from 40 mg to 20 mg.  Side effects are few; insomnia and a little cramping on dex days.  Hematocrit is a little low at 35%.
Unfortunately, I have a new problem.  Double vision has been tracked down to either a schwannoma or a meningioma on the 3rd cranial nerve.  Yes a benign tumor deep in my head.  I'm just starting to figure out the options and ramifications of each. I can do: nothing, craniotomy and surgery, or gamma knife.  Maybe go with gamma knife because it sounds cool?  It is slow growing so I don't have to rush.  Sticking tools through my brain (surgery) to get in deep enough sounds like potential for problems.  Maybe the myeloma takes me out soon enough I don't even need to worry about it, but the remission seems to indicate otherwise.
Yes, this is my myeloma blog, but it will probably be more about this new challenge for a while because, for me at least, it is not boring. I was okay with boring.  I'm not quite as okay with this.
I have my med records on this ordered so I can start having some informed conversations with others. Wouldn't it be nice if there was consensus among all the experts as to what should be done and who should do it?