Wow, been a while since I wrote anything.
I guess that is because having  nothing new is boring.  And boring is good in my case. I am still in remission, it will be two years in October.  I continue on 25mg Revlimid; dex has been cut from 40 mg to 20 mg.  Side effects are few; insomnia and a little cramping on dex days.  Hematocrit is a little low at 35%.
Unfortunately, I have a new problem.  Double vision has been tracked down to either a schwannoma or a meningioma on the 3rd cranial nerve.  Yes a benign tumor deep in my head.  I'm just starting to figure out the options and ramifications of each. I can do: nothing, craniotomy and surgery, or gamma knife.  Maybe go with gamma knife because it sounds cool?  It is slow growing so I don't have to rush.  Sticking tools through my brain (surgery) to get in deep enough sounds like potential for problems.  Maybe the myeloma takes me out soon enough I don't even need to worry about it, but the remission seems to indicate otherwise.
Yes, this is my myeloma blog, but it will probably be more about this new challenge for a while because, for me at least, it is not boring. I was okay with boring.  I'm not quite as okay with this.
I have my med records on this ordered so I can start having some informed conversations with others. Wouldn't it be nice if there was consensus among all the experts as to what should be done and who should do it?

Happy anniversary to me.  October 5 last year I got the good news of being in remission,  And it continues.  Monthly blood tests still show 0.00 protein.  I continue 25mg Revlimid and 40 mg dex.  I know how lucky I am.

A milestone has been reached.
All my numbers continue to look great. While I will continue to take 25mg Revlimid and 40mg Dex on the first day of the first 3 weeks of a 28 day cycle, I do not need to see my doctor for 3 months. I will still get monthly blood tests, but the doctor will call me if anything needs to change.
Sounds pretty good.

THE doctor tells me everything is still good. M protein 0.00. He says jokingly I'm too healthy for him to treat me.
Yesterday started week 3 of cycle 2 on 25 mg Revlimid and 40 mg Dex. Felt sick most of the day, first time that has happened. Very bad stomach ache off and on. treated with antacid.
And almost no sleep last night. Feeling better today

Week two began with no cramps, no itching, and no sleep again. and Tuesday has me with the hiccups. But not much to complain about. It will be early to bed tonight.

Itching is much better. Yesterday there was noticeable improvement, today not much left. Tomorrow is dex day, so will see what that brings this week.

It is Friday, 5th day of the new treatment cycle. I itch like crazy, mostly scalp, but legs and arms too. I do see I mentioned that during the first week of treatment last time. I did not mention when it stopped, so not sure how long to expect this to last. I am also pretty tired, and I mentioned that last time too. So I guess this is my normal reaction. Oh also my blood pressure has been quite low, and I made note of that too.