I am set to re-start Revlimid and dexamethasone on December 5. I will take that as maintenance for the foreseeable future.
Monday, November 21, 2011
Stem cells done
Yes! The Friday collection was sufficient to complete the job. So in two tries, I made it. They are being kept frozen by Puget Sound Blood Center for later use if needed. Saturday the doctor pulled out the central line. No anesthesia, just snip the stitches and pull it out. Not too much pain. Pressure on the insertion site controlled bleeding. Platelets are low because of the collection, so he wants me off aspirin and Plavix until this next Friday.
Friday, November 18, 2011
The central line went in Tuesday. Pretty simple procedure in radiology so ultrasound can guide placement. Mine is in the left subclavian vein, and it is threaded down through that to the superior vena cava. I have been surprised at how painful it is, and I'm glad for the vicodin given for pain control. Starting the day before the line placement, i have been given Neupogen which causes the marrow to produce more cells. It causes bone pain. I have been mostly unaffected by it, but noticed yesterday my hips are a little sore, but also I have had throbbing pain across the low back and chest, keeping time with my pulse. Pain pills for that too.
We started collecting stem cells yesterday, I got just under half of what I need, so I'm having my second collection today. Hope we get enough; I'd like ti be done with the central line.
Sunday, November 13, 2011
Central line
Correction. I am not having a port, but a central line. So much I don't know.
A central line is large bore to handle the amount of fluid necessary. It will hang outside the body. They cover it with a plastic tape of some sort to protect the site, allow for bathing. Guess I don't want to wrestle, Seems it would be easy to catch this thing on something and have a real problem. Anyway, that's what's happening this week.
Thursday, November 10, 2011
eye surgery, port placement
Last Friday, Nov 4, I had eye surgery. This was an epiretinal membrane removal. It had become wrinkled, which was distorting the vision. I also had a huge floater in the middle of my vision. As an outpatient under light anesthesia I had it removed. My recovery has not been swift, with much swelling and pain last night and this morning. I saw the doctor who prescribed some drops to reduce the pressure in my eye. They were magic, and i can see again. Not well, but it will slowly get better.
Next week I am getting a port placed for stem cell collection. I will be going in every day next week for a couple hours as part of the process.
Oh, forgot to mention that a pre surgery blood draw last week showed hematocrit down one point. I hope that was just within the margin of error for the test.
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