Tuesday, January 4, 2011

Reading Sean's Burgundy Thread on the Myeloma Beacon. He mentions the $7,200 bill for 21 Revlamid tablets.
Okay, I get that the company needs to make a profit, that there is risk investing in research and trials and all the rest with no guarantee of a viable product. I have been a stock holder of some biotech companies, and to attract investment, the company needs to have return on that investment. Okay.
What I don't get is how all the money we donate gets used in helping these companies with their research. They attract millions of dollars in donations, come up with a product that may help us live longer, and charge us $350 a pill to get it. Really? All the donated millions and this crazy price? On the one hand, I feel like a fool having given them all this free donated money through the years when I could have invested in their company and maybe gotten a few dollars back in dividends. Now that I have cancer I almost feel cheated. On the other hand, I guess I need to feel lucky that first of all, I don't need the drugs yet, but beyond that, when I do need them there are options out there.
It is tough to be faced with a disease that will kill you with no treatment available. It is also tough to be faced treatment that leads to financial decisions whether to kill our family assets to live a little longer.
I'll cross that bridge when I come to it.

Monday, January 3, 2011

Seems the transfusion has finally kicked in. I don't know why it takes several days to start feeling the benefit, but that's the way it is. But doing pretty good right now.